The EveryLife Foundation and Global Genes are excited to partner again for RARE on the Road 2021, a Rare Disease Leadership Tour that brings critical education and insights to rare disease patients, caregivers and other advocates. Whether you’re new to the rare disease community or a “seasoned veteran” this event is for you!
With feedback from the community, RARE on the Road 2021 will be comprised of one interactive webinar and three in-person meetings*. While all parts of this event are geared toward empowering advocates to build their skill set, enhance their knowledge, engage in advocacy, and network with their local rare disease community, in-person events will focus on state-specific information based on their location. *In-person events will be held in accordance with local law and observe Centers for Disease Control COVID-19 guidelines.
2021 Save-the-Dates!
March 23, 2021 (11:00am-1:30pm ET), Rare Disease Leadership Interactive Webinar
May 1, 2021: In-Person Training and Networking | Las Vegas, NV
May 15, 2021: In-Person Training and Networking | Miami, FL
May 22, 2021: In-Person Training and Networking | Chicago, IL
2021 Registration will open in February 2021. Stay tuned!
To learn more visit, Raretour.org
Related Articles
- EveryLife Foundation for Rare Diseases Emboldens Advocates and Urges Congress to Prioritize Patients During 15th Annual Rare Disease Week on Capitol Hill
- EveryLife Foundation Announces Scientific Workshop on ‘Ultra-Rare’ Diseases
- EveryLife Foundation for Rare Diseases Welcomes Michael Pearlmutter as CEO