One of Cures’ Tiniest but Most Powerful Voices Takes the #Path2Cures from NJ to the U.S. Senate – Personally Delivering His Artwork to 83 Offices
A familiar face stopped by the Capitol last week, taking the #Path2Cures from his home in New Jersey to the U.S. Senate to drop off some of his famous artwork to urge Senate support for #CuresNow. Seven-year-old Max Shill has Noonan syndrome, a rare genetic condition that prevents normal development in various parts of the body. Despite his condition and young age, Max is one of the most prolific and energetic voices for 21st Century Cures and the rare disease community. He’s captured the hearts of many on Capitol Hill through his passion for important legislation like the 21st Century Cures Act and the OPEN Act (which is a critical component of H.R. 6).
CBS Philly featured Max’s most recent visit to Capitol Hill, reporting, “Max visited 83 Senate offices across two days, leaving his original artwork at each one. A friend took care of the other 17, when Max’s legs gave out. … Max can now call himself a successful lobbyist. He convinced his own senator, Sen. Bob Menendez, D-New Jersey, to support the bill.”
One important element of Cures is making 21st century precision medicine patient-centered. By personalizing medication for kids like Max, we can ensure all patients are treated based on their unique characteristics.
Check out more pics on Facebook from Max’s visit to Washington HERE.
