Thanks to a partnership between the Foundation and California Action Link for Rare Diseases (CAL RARE), the California Legislature will launch a state caucus to tackle issues affecting California’s rare disease population. The Rare Disease California Caucus will help to bring public and legislative awareness to the unique needs of the rare disease community – patients, physicians, scientists, and industry. The caucus will give a permanent voice to the rare disease community in California. By working together with community stakeholders, the caucus will help find solutions that turn hope into treatments.
The bipartisan Rare Disease California Caucus will be led by Assemblyman and Health Committee Member Rob Bonta (D-Oakland) and Assemblyman and Health Committee Vice Chair Brian Maienschein (R-San Diego).
If you’re a California resident and would like your state representative to join the Rare Disease California Caucus, click here to take action.
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