During Rare Disease Week on Capitol Hill 2021, advocates will be able to win a grant for their rare disease organization of choice by participating in the events, attending virtual Hill meetings and taking part in other activities, advocates can win points. The top 50 point-earners from the week will win a grant –from $1,000 to $5,000 each– totaling $100,000 awarded by the EveryLife Foundation.
By registering for this virtual event, advocates can take part in a week of learning, networking, advocating, and an opportunity to win funds for their favorite rare disease organization. (Only organizations based in the US are eligible for a grant.)
Virtual Rare Disease Week on Capitol Hill 2021 will be held July 14th through July 22nd and will include the same opportunities as in-person Rare Disease Week, plus more!
To check out the full schedule of events and to register please visit rarediseaseweek.org
If you have any questions or need more information please reach out to RDLA staff Katelyn Laws at klaws@rareadvocates.org
