EveryLife Provides Testimony at Federal Advisory Committee for Heritable Disorders in Newborns and Children August 12, 2021 Share this page EveryLife’s Newborn Screening initiative is focused on ensuring babies receive lifesaving treatment opportunities through early diagnosis Newborn Screening Related Articles A Mid-Year State Policy Recap July 22, 2026 EveryLife Foundation for Rare Diseases Emboldens Advocates and Urges Congress to Prioritize Patients During 15th Annual Rare Disease Week on Capitol Hill March 10, 2026 Congress Passes Five-Year Reauthorization of Rare Pediatric Disease PRV Program February 03, 2026 See All News