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Team RARE 26.2 

A virtual endurance challenge built around connection, inclusion, and shared purpose, bringing our community together in support of individuals and families impacted by rare diseases.  


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Complete 26.2 Miles Your Way

All at once or throughout the month. On your own or with family, friends, coworkers, or your community. Even the miles already part of your daily routine can count. Move at your own pace and make every mile meaningful.

Run, walk, bike, roll, hike, dance, or combine activities, as you complete 26.2 miles between October 12 and November 13, 2026.  

Registration closes October 29, 2026

Join Team RARE 26.2

On November 1, a team of runners will represent the RARE Foundation at the New York City Marathon. Wherever you are and however you move, you’ll be part of the same effort to raise awareness for the rare disease community.

Participation is free, and fundraising is optional but encouraged. Registered participants who complete Team RARE 26.2 will receive a Team RARE medal.

Raise More. Make a Greater Impact!

  • $50: RARE Foundation T-shirt

  • $75: T-shirt + Team RARE water bottle

  • $100: T-shirt + water bottle + Team RARE gaiter

  • $250: T-shirt + water bottle + gaiter + RARE Foundation drawstring bag

  • $500: All of the above + customized RARE Converse shoes

  • $900: All of the above + customized RARE Nike shoes, with both Converse and Nike shoes included

All earned incentives will be mailed after Team RARE 26.2 concludes.
Check out the slideshow below to see the gear available at each
fundraising level.
Team RARE Medal
Team RARE Bag

Ready to join Team RARE 26.2? 

1. Register through Donorbox 

Visit the Team RARE 26.2 campaign page and select “I want to fundraise for this.” Enter your name and email, then follow the link in the confirmation email from Donorbox to create your account

2. Set up your participant page 

Once you’re logged in, find Team RARE 26.2 under Campaigns and select the edit icon. Add a photo, share why you’re participating, and set a fundraising goal if you’d like. then select “Update.” This page is also how you register and how we track everyone taking part. 

3. Do it your way! 

Beginning October 12, start logging your miles toward 26.2. Share your Donorbox page with family, friends, and coworkers and invite them to support your challenge. 

Questions?

However you move, and whoever moves with you, thank you for being part of Team RARE 

Have questions? Contact philanthropy@rareadvocates.org 

Upcoming RARE Events

  • 2026 Newborn Screening Bootcamp

    Online
  • September RARE Advocates Webinar

    Online
  • New England Lobby Day

    Online