Save the Date: March 2 – 4, 2027
This free multi-day event, hosted by the RARE Advocates, a program of the RARE Foundation, brings together rare disease advocates from across the country to make their voices heard with their Members of Congress. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate directly for policy change with their Members of Congress.
#RareDC2027
Travel Reimbursement Application for Rare Disease Week 2027 will be open from September 21 to November 6, 2026.
Rare Disease Week Registration will open on January 6, 2027.
Thank you to our 2026 RARE Disease Week Sponsors
Presidential
Leadership
Ranking
Champion
Co-Sponsor
Advocate
Grassroots
Questions?
If you have questions about RARE Disease Week, please email us at rarediseaseweek@rareadvocates.org.
