New England Lobby Day
Advocates residing in the states of Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont are welcome to register to attend the Virtual New England Rare Disease State Advocacy Event.
Many healthcare policies that affect the rare disease community are made at the state level. These policies impact diagnosis, treatment, access to care and more. One of the most powerful ways that you can influence policymakers is by meeting with them in person.
RARE Advocates is hosting a day of action for residents impacted by rare disease to join together and meet your state legislators, share your stories, and help advance the policy priorities of the rare disease community.
For more information, please contact us at advocacy@rareadvocates.org.
