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In Person

New England State Advocacy Day

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New England

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New England Rare Disease Advocacy Day is a day of action for New England residents impacted by rare disease to join together and meet with their state legislators, share their stories, and advance the priorities of the rare disease community.

Upcoming RARE Events

  • 2026 Newborn Screening Bootcamp

    Online
  • September RARE Advocates Webinar

    Online
  • How to Get Involved with RARE Foundation: Virtual Session

    Online